Journal publications
RePaDD researchers publish findings and results in well-respected known journals.
Below are the publications since the inception of the Centre in 2019.
Nagarajan SV, Lewis V, Halcomb E, Rhee J, Morton RL, Mitchell GK, Tieman J, Phillips JL, Detering K, Gavin J, Clayton JM. Barriers and facilitators to nurse-led advance care planning and palliative care practice change in primary healthcare: a qualitative study. Aust J Prim Health. 2022 Feb 8. doi: 10.1071/PY21081.
Chakraborty A, Oguoma VM, Coffee NT, Markey P, Chong A, Cargo M, Daniel M. Association of Built Environmental Features with Rates of Infectious Diseases in Remote Indigenous Communities in the Northern Territory, Australia. Healthcare (Basel). 2022 Jan 17;10(1):173. doi: 10.3390/healthcare10010173
Deb Rawlings, Lauren Miller-Lewis & Jennifer Tieman (2022). ‘It’s like a wedding planner’: Dying2Learn Massive Open Online Course participants views of the Death Doula role, Progress in Palliative Care, DOI: 10.1080/09699260.2021.2021371
Cheyne S, Lindley RI, Smallwood N, Tendal B, Chapman M, Fraile Navarro D, Good PD, Jenkin P, McDonald S, Morgan D, Murano M, Millard T, Naganathan V, Srikanth V, Tuffin P, Vogel J, White H, Chakraborty SP, Whiting E, William L, Yates PM, Callary M, Elliott J, Agar MR; National COVID-19 Clinical Evidence Taskforce. Care of older people and people requiring palliative care with COVID-19: guidance from the Australian National COVID-19 Clinical Evidence Taskforce. Med J Aust. 2021 Dec 5. doi: 10.5694/mja2.51353. Epub ahead of print.
Morgan DD, Litster C, Winsall M. et al. “It’s given me confidence”: A pragmatic qualitative evaluation exploring the perceived benefits of online end‐of‐life education on clinical care. BMC Palliat Care 20, 57 (2021). https://doi.org/10.1186/s12904-021-00753-y
Kochovska S, Agar MR, Phillips JL, et al. Applying evidence-based symptomatic treatments from other clinical disciplines to palliative care. Palliat Med. 2021;35(3):458-460. doi:10.1177/0269216321996984
Maeder A, Tieman J, Naveda B, Champion S, & Agnew T. (2021). Automated topic analysis for restricted scope health corpora: methodology and comparison with human performance. In T. X. Bui (Ed.), Proceedings of the 54th Annual Hawaii International Conference on System Sciences, HICSS 2021: January 4-8, 2021 (pp. 775-781). (Proceedings of the Annual Hawaii International Conference on System Sciences). University of Hawai'i at Manoa. https://doi.org/10.24251/HICSS.2021.095
Tieman J, Lewis V. Benefits of structured engagement with target audiences of a health website: Study design for a multi-case study. Healthcare (Basel). 2021;9(5):600. Published 2021 May 18. doi:10.3390/healthcare9050600
Rawlings D, Davies G, Tieman J. Compassionate communities – What does this mean for roles such as a death doula in end-of-life care? Public Health. 2021;194:167-169. doi:10.1016/j.puhe.2021.02.038
Taylor A, Tieman J, & Maeder A. (2021). Digital Innovations for Aged Care: Impacts in the COVID-19 Pandemic. In M. Merolli, C. Bain, & L. K. Schaper (Eds.), Healthier Lives, Digitally Enabled - Selected Papers from the Digital Health Institute Summit 2020: Selected Papers from the Digital Health Institute Summit 2020 (Vol. 276, pp. 51-57). (Studies in Health Technology and Informatics; Vol. 276). IOS PRESS. https://doi.org/10.3233/SHTI210010
Rawlings D, Litster C, Miller-Lewis L, Tieman J, Swetenham K. End-of-life doulas: A qualitative analysis of interviews with Australian and International death doulas on their role. Health Soc Care Community. 2021;29(2):574-587. doi:10.1111/hsc.13120
To THM, Currow DC, Swetenham K, Morgan DD, Tieman J. How Can Activity Monitors Be Used in Palliative Care Patients? J Palliat Med. 2019;22(7):830-832. doi:10.1089/jpm.2018.0414
Vandersman P, Perimal-Lewis L, & Tieman J. (2021). Is There an App for That? A Scoping Review of Apps for Care Workers in the Aged Care Sector. In A. J. Maeder, C. Higa, M. E. L. van den Berg, & C. Gough (Eds.), Telehealth Innovations in Remote Healthcare Services Delivery : Global Telehealth 2020 (pp. 124-134). (Studies in Health Technology and Informatics; Vol. 277). IOS Press BV. https://doi.org/10.3233/SHTI210035
Damarell RA, Morgan DD, Tieman JJ, & Healey DF. (2021). Multimorbidity through the lens of life-limiting illness: How helpful are Australian clinical practice guidelines to its management in primary care? Australian journal of primary health, 27(2), 122-129. https://doi.org/10.1071/PY20164
Rawlings D, Winsall M, Miller-Lewi L, & Tieman J. (2021). Natural Death Versus Known Date-Of-Death: A Qualitative Study of Views on Voluntary Assisted Dying in an Online Course About Death. Omega (United States). https://doi.org/10.1177/00302228211008771
Mills J, Fox J, Damarell . et al. Palliative care providers’ use of digital health and perspectives on technological innovation: a national study. BMC Palliat Care 20, 124 (2021). https://doi.org/10.1186/s12904-021-00822-2
Tait P, Gravier S, Erny-Albrecht K, & Tieman J. (2019).Symptom Management in the Terminal Phase: Turning Challenges into Opportunities. Australasian Journal on Ageing, 38(S1), 61-62. [P58]. https://doi.org/10.1111/ajag.12661
Philip J, Collins A, Phillips J, et al. The development of the Australian National Palliative Care Clinical Studies Collaborative “Integrating qualitative research into clinical trials framework”. J Palliat Med. 2021;24(3):331-337. doi:10.1089/jpm.2020.0480
Dolgoy N, Driga A, Brose JM. The Essential Role of Occupational Therapy to Address Functional Needs of Individuals Living with Advanced Chronic Cancers. Semin Oncol Nurs. 2021;37(4):151172. doi:10.1016/j.soncn.2021.151172
Keenan AJ, Tsourtos G, Tieman J. The value of applying ethical principles in telehealth practices: Systematic review. J Med Internet Res. 2021;23(3):e25698. Published 2021 Mar 30. doi:10.2196/25698
Rawlings D, Winsall M, Yin H, Devery K. What is a compassionate response in the emergency department? Learner evaluation of an End-of-Life Essentials online education module [published online ahead of print, 2021 May 5]. Emerg Med Australas. 2021;10.1111/1742-6723.13776. doi:10.1111/1742-6723.13776
Tait P, Chakraborty A, Jones K, & Tieman J. (2021). What Is the Community Pharmacists’ Role in Supporting Older Australians with Palliative Care Needs? Healthcare (Switzerland), 9(5), [489]. https://doi.org/10.3390/healthcare9050489
Miller-Lewis LR, Lewis TW, Tieman J, Rawlings D, Parker D, Sanderson CR. Words describing feelings about death: A comparison of sentiment for self and others and changes over time. PLoS One. 2021;16(1):e0242848. Published 2021 Jan 6. doi:10.1371/journal.pone.0242848
Kochovska S, Chang S, Morgan DD, et al. Activities foregone because of chronic breathlessness: A cross-sectional, population prevalence study Palliat Med Rep. 2020;1(1):166-170. Published 2020 Aug 18. doi:10.1089/pmr.2020.0083
Damarell RA, Morgan DD, Tieman JJ, Healey D. Bolstering General Practitioner Palliative Care: A Critical Review of Support Provided by Australian Guidelines for Life-Limiting Chronic Conditions. Healthcare (Basel). 2020;8(4):553. Published 2020 Dec 11. doi:10.3390/healthcare8040553
Barnes-Harris M, Allingham S, Morgan D, et al. Comparing functional decline and distress from symptoms in people with thoracic life-limiting illnesses: Lung cancers and non-malignant end-stage respiratory diseases. Thorax. 2021:thoraxjnl-2020-216039. doi:10.1136/thoraxjnl-2020-216039
Morgan DD, Marston C, Barnard E, Farrow C. Conserving dignity and facilitating adaptation to dependency with intimate hygiene for people with advanced disease: A qualitative study. Palliat Med. 2021;35(7):1366-1377. doi:10.1177/02692163211017388
Morgan DD, Brown A, Cerdor PA, Currow DC. Does Resource Utilization Group-Activities of Daily Living Help Us Better Interpret Australian Karnofsky-Modified Performance Scale? J Palliat Med. 2020;23(9):1153-1154. doi:10.1089/jpm.2020.0163
Rawlings D, Yin H, Devery K, Morgan D, Tieman J. End-of-Life Care in Acute Hospitals: Practice Change Reported by Health Professionals Following Online Education. Healthcare (Basel). 2020;8(3):254. Published 2020 Aug 6. doi:10.3390/healthcare8030254
Rawlings D, Winsall M, Yin H, Devery K, Morgan DD. Evaluation of an End-of-Life Essentials Online Education Module on Chronic Complex Illness End-of-Life Care. Healthcare (Basel). 2020;8(3):297. Published 2020 Aug 25. doi:10.3390/healthcare8030297
Hunt J, Brown L, Fazekas B, et al. Evaluation of the IMPACCT Rapid Program: A Cross-Sectional Survey of International Site Investigators. J Palliat Med. 2020;23(10):1292-1293. doi:10.1089/jpm.2020.0239
Factors affecting access to subcutaneous medicines for people dying in the community
Tait P, Sheehy K, Sindhusake D, Muscillo N. Factors affecting access to subcutaneous medicines for people dying in the community. Progress in Palliative Care. 2020/09/02 2020;28(5):326-333. doi:10.1080/09699260.2020.1746033
Damarell, R.A., Morgan, D.D. & Tieman, J.J. General practitioner strategies for managing patients with multimorbidity: a systematic review and thematic synthesis of qualitative research. BMC Fam Pract 21, 131 (2020). doi:10.1186/s12875-020-01197-8
Damarell RA, Lewis S, Trenerry C, Tieman JJ. Integrated Care Search: development and validation of a PubMed search filter for retrieving the integrated care research evidence. BMC Med Res Methodol. 2020;20(1):12. Published 2020 Jan 21. doi:10.1186/s12874-020-0901-y
Late mortality in people with cancer: a population-based Australian study
Koczwara, B., Meng, R., Miller, M.D., Clark, R.A., Kaambwa, B., Marin, T., Damarell, R.A. and Roder, D.M. (2021), Late mortality in people with cancer: a population-based Australian study. Med J Aust, 214: 318-323. doi:10.5694/mja2.50879
Oh C, Miller-Lewis L, Tieman J. Participation in an Online Course about Death and Dying: Exploring Enrolment Motivations and Learning Goals of Health Care Workers. Education Sciences. 2020; 10(4):112. https://doi.org/10.3390/educsci10040112
Tait P, Cuthbertson E, Currow DC. What Are the Factors Identifying Caregivers Who Need Help in Managing Medications for Palliative Care Patients at Home? A Population Survey. J Palliat Med. 2020;23(8):1084-1089. doi:10.1089/jpm.2019.0573. Palliat Med Rep. 2020;1(1):166-170. Published 2020 Aug 18. doi:10.1089/pmr.2020.0083
Damarell RA, Morgan DD, Tieman JJ, Healey D. Bolstering General Practitioner Palliative Care: A Critical Review of Support Provided by Australian Guidelines for Life-Limiting Chronic Conditions. Healthcare (Basel). 2020;8(4):553. Published 2020 Dec 11. doi:10.3390/healthcare8040553
Barnes-Harris M, Allingham S, Morgan D, et al. Comparing functional decline and distress from symptoms in people with thoracic life-limiting illnesses: lung cancers and non-malignant end-stage respiratory diseases. Thorax. 2021:thoraxjnl-2020-216039. doi:10.1136/thoraxjnl-2020-216039
Morgan DD, Marston C, Barnard E, Farrow C. Conserving dignity and facilitating adaptation to dependency with intimate hygiene for people with advanced disease: A qualitative study. Palliat Med. 2021;35(7):1366-1377. doi:10.1177/02692163211017388
Morgan DD, Brown A, Cerdor PA, Currow DC. Does Resource Utilization Group-Activities of Daily Living Help Us Better Interpret Australian Karnofsky-Modified Performance Scale?. J Palliat Med. 2020;23(9):1153-1154. doi:10.1089/jpm.2020.0163
Rawlings D, Yin H, Devery K, Morgan D, Tieman J. End-of-Life Care in Acute Hospitals: Practice Change Reported by Health Professionals Following Online Education. Healthcare (Basel). 2020;8(3):254. Published 2020 Aug 6. doi:10.3390/healthcare8030254
Rawlings D, Winsall M, Yin H, Devery K, Morgan DD. Evaluation of an End-of-Life Essentials Online Education Module on Chronic Complex Illness End-of-Life Care. Healthcare (Basel). 2020;8(3):297. Published 2020 Aug 25. doi:10.3390/healthcare8030297
Hunt J, Brown L, Fazekas B, et al. Evaluation of the IMPACCT Rapid Program: A Cross-Sectional Survey of International Site Investigators. J Palliat Med. 2020;23(10):1292-1293. doi:10.1089/jpm.2020.0239
Factors affecting access to subcutaneous medicines for people dying in the community
Tait P, Sheehy K, Sindhusake D, Muscillo N. Factors affecting access to subcutaneous medicines for people dying in the community. Progress in Palliative Care. 2020/09/02 2020;28(5):326-333. doi:10.1080/09699260.2020.1746033
Damarell, R.A., Morgan, D.D. & Tieman, J.J. General practitioner strategies for managing patients with multimorbidity: a systematic review and thematic synthesis of qualitative research. BMC Fam Pract 21, 131 (2020). doi:10.1186/s12875-020-01197-8
Damarell RA, Lewis S, Trenerry C, Tieman JJ. Integrated Care Search: development and validation of a PubMed search filter for retrieving the integrated care research evidence. BMC Med Res Methodol. 2020;20(1):12. Published 2020 Jan 21. doi:10.1186/s12874-020-0901-y
Late mortality in people with cancer: a population-based Australian study
Koczwara, B., Meng, R., Miller, M.D., Clark, R.A., Kaambwa, B., Marin, T., Damarell, R.A. and Roder, D.M. (2021), Late mortality in people with cancer: a population-based Australian study. Med J Aust, 214: 318-323. doi:10.5694/mja2.50879
Oh C, Miller-Lewis L, Tieman J. Participation in an Online Course about Death and Dying: Exploring Enrolment Motivations and Learning Goals of Health Care Workers. Education Sciences. 2020; 10(4):112. https://doi.org/10.3390/educsci10040112
Tait P, Cuthbertson E, Currow DC. What Are the Factors Identifying Caregivers Who Need Help in Managing Medications for Palliative Care Patients at Home? A Population Survey. J Palliat Med. 2020;23(8):1084-1089. doi:10.1089/jpm.2019.0573
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