Journal publications
RePaDD researchers publish findings and results in well-respected known journals.
Below are the publications since the inception of the Centre in 2019.
Johnson K, Poudel A, Ayalew AA, Thepsourinthone J, Heer S, Morgan D, Mullan J, Bonney A, Clapham S. Screening Protocols for Identifying Palliative Care Needs in Primary Care: a scoping review. J Pain Symptom Manage. 2026 Feb 27:S0885-3924(26)00082-5. doi: 10.1016/j.jpainsymman.2026.02.018. Epub ahead of print. PMID: 41765292.
Swetenham K, Tieman J, Holden D, Bisset A, Ricci M, Bahrami MA. When Every Call Counts: Insights from an Outer Regional Cohort of Palliative Care Patients Using a Navigation Service in South Australia. Palliative Medicine Reports. 2026;7. doi:10.1177/26892820251394589
Singh GK, Hickman LD, Virdun C. Unlocking Potential: Advancing Integrated Palliative Care in Heart Failure Through Supportive Care Clinics. Heart Lung Circ. 2026 Feb;35(2):190-191. doi: 10.1016/j.hlc.2025.09.003.
Bollig G, Mills J, Müller-Koch S, Pani P, Neumann B, Zelko E. Last Aid Courses as a Means for Public Palliative Care Education-A Narrative Review of the Literature and 10 Years of Experience Around the World with Implications for Future Research. Healthcare (Basel). 2025 Dec 31;14(1):96. doi: 10.3390/healthcare14010096.
Sundararajan K, Aziz S, Anderson N, Damarell RA, Raith E, Phelan C, Subramaniam A. Insights from critical care clinicians, patients and families from culturally and linguistically diverse backgrounds about end-of-life care in the intensive care unit: a scoping review. BMJ Open. 2025 Dec 28;15(12):e108966. doi: 10.1136/bmjopen-2025-108966.
Ekberg S, Danby S, Watts J, Weinglass L, Cooke R, Nelson M, Pitt E, Ekberg K, Bluebond-Langner M, Langner R, Bradford N, Yates P, Delaney A, Duffield J, Orr A, Fleming S, Scully M, Ryan S, Herbert A. Involving Nonspeaking and Speaking Children in Clinical Encounters: An Observational Study of Real-World Clinical Encounters. J Paediatr Child Health. 2025 Dec 23. doi: 10.1111/jpc.70253. Epub ahead of print.
Farrer O, Tieman J. Exploring the Implications of Aged Care Reform on Allied Health Workforce and Capacity to Deliver Palliative and End-of-Life Care. Healthcare (Basel). 2025 Dec 8;13(24):3207. doi: 10.3390/healthcare13243207.
Juhrmann ML, Vandersman P, Damarell RA, Khamis Sharaf A, San Martin A, Donkor A, Salifu Y. 'Saying goodbye'. . . A systematic integrative review of palliative caregiving in intergenerational living contexts. Palliat Med. 2025 Dec 1:2692163251394880. doi: 10.1177/02692163251394880. Epub ahead of print.
Vandersman P, Chakraborty A, Rowley G, Tieman J. "I thought he had longer than that": family caregivers' experiences of grief, loss, and bereavement in residential aged care. BMC Palliat Care. 2025 Nov 26;24(1):296. doi: 10.1186/s12904-025-01929-6.
Sundararajan K, Subramaniam A, Hanson-Easey S, Thompson C, Phelan C, Doherty S, Plummer M, Mahmood MA, Bloomer MJ. "Who are they? What does that mean for care?": An exploratory descriptive study of clinicians' experiences of caring for patients and family members from culturally diverse backgrounds. Intensive Crit Care Nurs. 2025 Nov 24;93:104291. doi: 10.1016/j.iccn.2025.104291. Epub ahead of print.
Sundararajan K, Subramaniam A, Phelan C, Plummer M, Thompson C, Hanson-Easey S, Doherty S, Milera T, Cowling N, Mahmood MA, Bloomer MJ. "There has to be an element of trust first": An exploratory descriptive study of caring for Indigenous Peoples, family, and the wider community in Australian intensive care units. Aust Crit Care. 2025 Nov 24;39(1):101465. doi: 10.1016/j.aucc.2025.101465. Epub ahead of print.
Collier A, Appachoo S, Frey R, Jones V, Birtwistle J, Allsop M, Bloomfield K. Extending the reach of palliative care-a double-edged sword: a qualitative study of clinicians' experiences of delivering telehealth in Australia and Aotearoa New Zealand. BMC Palliat Care. 2025 Nov 13;24(1):288. doi: 10.1186/s12904-025-01932-x.
Schilling C, Bailey C, Merollini K, Giles A, Platts C, Currow DC, Button E, Runacres F, Crawford GB, Merlo G, Yoong J, Philip J, Tieman J, Agar MR, Yates P, Hudson P, Sundararajan V, Carter H, McCaffrey N. Toward a comprehensive research agenda: exploring the health economics of palliative care in Australia. BMC Palliat Care. 2025 Oct 30;24(1):276. doi: 10.1186/s12904-025-01867-3.
Damarell R, Nicholls S, Tyndall J, Phelan C. Beyond black and white: A framework for identifying grey literature in palliative care research. Palliat Med. 2025 Oct 23:2692163251381487. doi: 10.1177/02692163251381487. Epub ahead of print.
Marshall C, Virdun C, Phillips JL. Strengthening care for adults with palliative care needs in high-income rural communities: a global policy environmental scan. BMC Palliat Care. 2025 Oct 14;24(1):253. doi: 10.1186/s12904-025-01797-0.
Henry AE, Jones V, Surgenor L, Sopoaga F. (2025). Constructing a theory of Cook Islands Māori palliative care in New Zealand. Mortality, 1–17. https://doi.org/10.1080/13576275.2025.2567549.
Murray CM, de la Perrelle L, Mart K, Baranoff J, Richards G, Rosa Hernandez G, Berndt A. Supporting the Well-Being of People Living With Dementia and Their Family Carers Through Concurrent Arts and Well-Being Community Programs: Qualitative Perspectives of Participants and Facilitators. Dementia (London). 2025 Oct 15:14713012251383967. doi: 10.1177/14713012251383967. Epub ahead of print.
Virdun C, Jones L, Singh GK, Yates P, Phillips JL, Mudge A. Improving patient reported experience in inpatients with palliative care needs: a pre-post quality improvement study. BMC Palliat Care. 2025 Oct 7;24(1):245. doi: 10.1186/s12904-025-01883-3.
Manoharan N, Armitage N, Virdun C. Corticosteroid use in pediatric neuro-oncology symptom management: a rapid review. Neurooncol Pract. 2025 Sep 17;npaf097. doi: 10.1093/nop/npaf097.
Ho JJ, Brown CK, Bemis H, Cotter LE, DiBiase J, Gerber MR, Greenfield DE, Kusmaul N, Matinrad H, Mills J, Nathanson A, Peck S, Radbill LM, Wallace CL, Rosa WE. Top Ten Tips Palliative Care Clinicians Should Know About Trauma-Informed Care. J Palliat Med. 2025 Aug 8:10.1177/10966218251366151. doi: 10.1177/10966218251366151.
Reeve E, Cowan K, Kalisch Ellett L, Sinclair R, Pietsch A, Pietsch T, de la Perrelle L, Deimel J, To J, Daly S, Whitehead C, Hilmer SN, Chenoweth L, Gilmartin-Thomas J, Sawan M, Nguyen TA, Tan E, Sluggett JK, Quirke LS, McEvoy AM, Ailabouni N. Top 10 consumer and healthcare professional priorities for research in the field of quality use of medicines in people living with dementia. J Alzheimers Dis. 2025 Sep;107(1):207-222. doi: 10.1177/13872877251359984. Epub 2025 Jul 27.
Yeo ZWE, Tieman J, George S, Farrer O. Experiences of allied health clinicians and tertiary educators working in and teaching palliative care - a qualitative study. Aust Health Rev. 2025 Jul 7. doi: 10.1071/AH25061. Epub ahead of print.
Virdun C, Singh GK, Yates P, Phillips JL, Mudge A. Understanding the acute care context to inform palliative care improvements: a qualitative study of hospital-based multidisciplinary clinicians. BMC Palliat Care. 2025 Jul 2;24(1):185. doi: 10.1186/s12904-025-01815-1.
Winsall M, Devery K, Phelan C. Healthcare Professionals' Advice to Guide End-Of-Life Care Education Delivery in Hospitals: A Qualitative Study. J Adv Nurs. 2025 Jul 1. doi: 10.1111/jan.70031. Epub ahead of print.
Vandersman P, Tieman J. 'Early planning makes for a good death': residential aged care nurses' views on caring for those in the last months of life. BMC Nurs. 2025 Jul 1;24(1):719. doi: 10.1186/s12912-025-03411-3.
Satchell E, Gott M, Juhrmann M, Dicker B, Anderson NE. Emergency ambulance care of families during death, dying, and bereavement: A document analysis of Australian and Aotearoa New Zealand clinical practice guidelines. Australas Emerg Care. 2025 Jun 26:S2588-994X(25)00043-0. doi: 10.1016/j.auec.2025.06.004. Epub ahead of print. PMID: 40579313.
Freeman M, Mills J, Skaczkowski G, & Gunn KM. (2025). Investigating the use of strengths-based approaches for health research in rural communities: A scoping review. Progress in Palliative Care, 1–24. 2025 Jun 19. https://doi.org/10.1080/09699260.2025.2515660
Nguyen T, Dam A, Bui L, Pham T, Krakauer EL, Phelan C. I Wait for Leftover Morphine: A Qualitative Study of Barriers to Safe Opioid Access for Cancer Pain Relief in Vietnam. JCO Glob Oncol. 2025 Jun;11:e2500026. doi: 10.1200/GO-25-00026.
Tait P, Daff D, Everingham P, Leahy A, Parker R, Perry R, Smith M, Morris D. Enhancing digital healthcare: aligning Australia's digital health strategies with value-based healthcare principles. Aust Health Rev. 2025 Jun;49:AH25022. doi: 10.1071/AH25022.
Nicholls S, Tieman J. Assessing the value of online palliative care information. Aust Health Rev. 2025 May;49:AH25032. doi: 10.1071/AH25032. PMID: 40383708.
O'Brien P, Sinclair C, Kinsey I, Zanker J, Juhrmann M, Smith R, Thompson S, Bessarab D, Lo Giudice D. Developing patient journey maps with Aboriginal and Torres Strait Islander peoples living with dementia or cognitive impairment and their carers: protocol. BMJ Open. 2025 May 8;15(5):e090672. doi: 10.1136/bmjopen-2024-090672.
Jurgens KE, Currow DC, Tieman J. What functions do palliative care bereavement services deliver? A scoping review. Palliat Care Soc Pract. 2025 Mar 22;19:26323524251326947. doi: 10.1177/26323524251326947.
Singh G, Virdun C, Rattray M, Prichard R, Wynne R. (2025). The effectiveness of nurse-led palliative care needs assessment on patients’ quality of life and symptom burden: a systematic review. Submitted to International Journal of Nursing Studies Advances - In Press. Volume 8, 2025,100343, ISSN 2666-142X. doi.org/10.1016/j.ijnsa.2025.100343.
Hooper M, Virdun C, Phillips JL. Capacity-building strategies that support correctional and justice health professionals to provide best-evidenced based healthcare for people in prison: a systematic review. Int J Equity Health. 2025 Apr 29;24(1):115. doi: 10.1186/s12939-025-02462-x.
Sundararajan K, Dafoe S, Hayres K, Koronis A, Doherty S, Manchanda S, Phelan C, Mahmood MA. Utility of an ICU peer support group for ICU survivors and caregivers post-discharge from a quaternary hospital (ICU Peer Support Study). Patient Educ Couns. 2025 Apr 25;137:108795. doi: 10.1016/j.pec.2025.108795. Epub ahead of print.
Javanparast S, Tieman J. Evaluation of palliative care needs rounds in residential aged care homes in South Australia: a qualitative study. BMC Palliat Care. 2025 Mar 13;24(1):66. doi: 10.1186/s12904-025-01695-5.
Omoya O, Njoroge T, De Bellis A. A Qualitative Evaluation of a Palliative Care Education Program for Paramedics. J Palliat Med. 2025 Feb;28(2):193-200. doi: 10.1089/jpm.2024.0282.
Collier A, Chapman M, Hosie A. 'I think it's wrong, but it helps' - a focused ethnography of benzodiazepine practices in specialist palliative care. Health Sociol Rev. 2025 Feb 18:1-17. doi: 10.1080/14461242.2025.2461332. Epub ahead of print.
Van Dinther K, Noonan K, Leonard R, Javanparast S. The Death Literacy Index: Testing the Death System Literacy of Unpaid Carers of Palliative Patients. Omega (Westport). 2025 Feb 12:302228251319478. doi: 10.1177/00302228251319478. Epub ahead of print.
Virdun C, Button E, Phillips JL, Saunders CH, Yates P, Luckett T. Feasibility and acceptability of the brief patient-reported experience measure consideRATE within the hospital setting for patients with palliative care needs, their families/carers and clinicians. Palliat Med. 2025 Jan;39(1):151-162. doi: 10.1177/02692163241291343. Epub 2024 Nov 8.
Gough C, Damarell RA, Dizon J, Ross PDS, Tieman J. Rehabilitation, reablement, and restorative care approaches in the aged care sector: a scoping review of systematic reviews. BMC Geriatr. 2025 Jan 20;25(1):44. doi: 10.1186/s12877-025-05680-8.
Lane AP, Tieman J. "We Work in an Industry Where We're Here to Care for Others, and Often Forget to Take Care of Ourselves": Aged-Care Staff Views on Self-Care. Geriatrics (Basel). 2025 Jan 2;10(1):3. doi: 10.3390/geriatrics10010003.
Adams A, Miller-Lewis L, Tieman J. Usability testing of a palliative care information resource - outcomes from the formative evaluation of the CarerHelp Toolkit prototype. Inform Health Soc Care. 2024 Dec 23:1-17. doi: 10.1080/17538157.2024.2433942. Epub ahead of print.
Vandersman P, Tieman J. 'Technology in end-of-life care is very important': the view of nurses regarding technology and end-of-life care. BMC Nurs. 2024 Nov 6;23(1):809. doi: 10.1186/s12912-024-02475-x.
Sundararajan K, Raith E, Hu R, Damarell RA, Subramaniam A, Anderson N, Phelan C. Perspectives and insights of critical care clinicians, patients and families from culturally and linguistically diverse backgrounds around end-of-life care in an ICU: a scoping review protocol. BMJ Open. 2024 Nov 2;14(11):e090168. doi: 10.1136/bmjopen-2024-090168.
Farrer O, Tieman J. What Evidence Exists to Support Palliative Allied Health Practice in Aged Care: A Scoping Review. Healthcare (Basel). 2024 Oct 3;12(19):1973. doi: 10.3390/healthcare12191973.
Marshall C, Virdun C, Phillips JL. Patient and family perspectives on rural palliative care models: A systematic review and meta-synthesis. Palliat Med. 2024 Oct;38(9):935-950. doi: 10.1177/02692163241269796.
Tieman J, Nicholls S. Enhancing the efficacy of healthcare information websites: a case for the development of a best practice framework. BMJ Open. 2024 Sep 3;14(9):e088789. doi: 10.1136/bmjopen-2024-088789.
Vandersman P, Chakraborty A, Rowley G, Tieman J. The matter of grief, loss and bereavement in families of those living and dying in residential aged care setting: A systematic review. Arch Gerontol Geriatr. 2024 Sep;124:105473. doi: 10.1016/j.archger.2024.105473. Epub 2024 May 6.
Ng HS, Meng R, Marin TS, Damarell RA, Buckley E, Selvanayagam JB, Koczwara B. Cardiovascular mortality in people with cancer compared to the general population: A systematic review and meta-analysis. Cancer Med. 2024 Aug;13(15):e70057. doi: 10.1002/cam4.70057.
Kochovska S, Ferreira D, Chang S, Brunelli V, Morgan D, Similowski T, Johnson M, Ekström M, Currow D. Disability and long-term breathlessness: a cross-sectional, population study. BMJ Open Respir Res. 2024 Jul 22;11(1):e002029. doi: 10.1136/bmjresp-2023-002029.
Morgan DD, Tieman JJ, Ekström MP, Currow DC. Trajectories of Activities of Daily Living for Patients with Advanced Cancer Beyond the Last Eight Weeks of Life. Implications for Palliative Rehabilitation. Palliat Med Rep. 2024 Jul 19;5(1):258-260. doi: 10.1089/pmr.2024.0034.
Singh GK, Mudge A, Matthews R, Yates P, Phillips JL, Virdun C. Experience of care from the perspectives of inpatients with palliative care needs: a cross-sectional study using a patient reported experience measure (PREM). BMC Palliat Care. 2024 Jul 18;23(1):177. doi: 10.1186/s12904-024-01494-4.
Every A, Cuesta-Briand B, Hansell D, Burich S, Tofilua F, Crawford GB, Collier A. A qualitative study of Samoan cancer patients' experiences. Int J Palliat Nurs. 2024 Jul 2;30(7):380-388. doi: 10.12968/ijpn.2024.30.7.380.
Humphrey GB, Inacio MC, Lang C, Churches OF, Sluggett JK, Williams H, Morgan DD, To THM, Kellie A, Wesselingh S, Caughey GE. Estimating potential palliative care needs for residential aged care: A population-based retrospective cohort study. Australas J Ageing. 2024 Jun 24. doi: 10.1111/ajag.13345. Epub ahead of print.
Bass S, Stewart E, Savage E, Wells G, Collier A, Minton O. 'Did we do our best?' Reviewing person-centred compassionate care at the end of life in an acute hospital in the United Kingdom, during the COVID-19 pandemic. An Appreciative Inquiry. Mortality. 2024. 1–13. https://doi.org/10.1080/13576275.2024.2366843
Rawlings D, Miller-Lewis L, Tieman J. Impact of the COVID-19 Pandemic on Funerals: Experiences of Participants in the 2020 Dying2Learn Massive Open Online Course. Omega (Westport). 2024 Jun;89(2):429-451. doi: 10.1177/00302228221075283. Epub 2022 Feb 24.
Van Dinther K, Javanparast S. Voices of unpaid carers: problems and prospects in accessing palliative care and self-care information, resources and services. Palliat Care Soc Pract. 2024 May 29;18:26323524241255386. doi: 10.1177/26323524241255386.
van Oosterom N, Agar MR, Walpole G, Casey P, Moffat P, Bradley K, Cook A, Johnson C, Chye R, Oehme J, Senatore M, Virdun C, Pearson M, Featherstone I, Lawlor PG, Bush SH, Daveson B, Clapham S, Campbell K, Hosie A. Driving quality in delirium care through a patient-centered monitoring system in palliative care: Protocol for the two-staged exploratory sequential mixed methods MODEL-PC study. Delirium Communications. 2024 May 8. doi: 10.56392/001c.94808.
Donkor A, Adotey PN, Ofori EO, Ayitey JA, Ferguson C, Luckett T, Vanderpuye V, Osei-Bonsu EB, Phelan C, Hunt K. Prevalence of Preferences for End-of-Life Place of Care and Death Among Patients With Cancer in Low- and Middle-Income Countries: A Systematic Review and Meta-Analysis. JCO Glob Oncol. 2024 May;10:e2400014. doi: 10.1200/GO.24.00014.
Nguyen T, Dam A, Nguyen D, Tran P, Truong NLT, Nguyen H, Le D, Bui L, Than T, Dang T, Phelan C, Krakauer EL, Pham T. Opioid Therapy for Cancer Pain in Vietnam: Knowledge, Attitudes, and Perceived Barriers Among Health Care Professionals, Policymakers, and Regulators. JCO Glob Oncol. 2024 May;10:e2300463.
Maccallum F, Breen LJ, Phillips JL, Agar MR, Hosie A, Tieman J, DiGiacomo M, Luckett T, Philip J, Ivynian S, Chang S, Dadich A, Grossman CH, Gilmore I, Harlum J, Kinchin I, Glasgow N, Lobb EA. The mental health of Australians bereaved during the first two years of the COVID-19 pandemic: a latent class analysis. Psychol Med. 2024 May;54(7):1361-1372. doi: 10.1017/S0033291723003227. Epub 2024 Jan 5.
Omoya O, De Bellis A, Breaden K. Experiences of Australian emergency doctors and nurses using advance care directives in the provision of care at the end of life. Emerg Med Australas. 2024 Apr;36(2):231-242. doi: 10.1111/1742-6723.14343. Epub 2023 Nov 8.
Davies C, Basire K, Jones V, Gillmore D, Hosie A, Gourley A, Collier A. "Beyond Feasibility": A Qualitative Study of Patients, Their Whānau (Family) and Staff Perspectives and Experiences of a Non- Pharmacological Delirium-Prevention Intervention in Two Aotearoa/New Zealand Hospices. J Pain Symptom Manage. 2024 Apr;67(4):327-336.e2. doi: 10.1016/j.jpainsymman.2024.01.012. Epub 2024 Jan 20.
Rawlings D, Winsall M, Yin H, Devery K. "Holding back my own emotions": Evaluation of an online education module in pediatric end-of-life care. J Child Health Care. 2024 Mar;28(1):116-131. doi: 10.1177/13674935221076214. Epub 2022 Apr 5.
Lobb E, Maccallum F, Phillips JL, Agar M, Hosie A, Breen LJ, Tieman J, DiGiacomo M, Luckett T, Philip J, Ivynian S, Chang S, Dadich A, Harlum J, Gilmore I, Kinchin I, Grossman C, Glasgow N. The COVID-19 Pandemic: Bereavement Experiences Between Hospital and Home Deaths in Palliative Care. J Pain Symptom Manage. 2024 Feb;67(2):147-156. doi: 10.1016/j.jpainsymman.2023.10.025. Epub 2023 Nov 15.
Brose JM, Willis E, Morgan DD. Occupational adaptation for adults living with advanced cancer: A phenomenological longitudinal study. Aust Occup Ther J. 2024 Feb;71(1):52-63. doi: 10.1111/1440-1630.12908. Epub 2023 Oct 8.
Javanparast S, Phelan C, Allcroft P. Interface between voluntary assisted dying and palliative care in Australia: what evidence do we need to inform policy and practice? Intern Med J. 2024 Jan 24;54(1):192-193. doi: 10.1111/imj.16310.
To T, Hakendorf P, Currow DC. Screening for End-of-Life in Acute Hospitals: A Cross-Sectional Survey. Am J Hosp Palliat Care. 2024 Jan 9:10499091231226299. doi: 10.1177/10499091231226299. Epub ahead of print.
Collier A, Balmer D, Gilder E, Parke R. Patient safety and hospital visiting at the end of life during COVID-19 restrictions in Aotearoa New Zealand: a qualitative study. BMJ Qual Saf. 2023 Dec;32(12):704-711. doi: 10.1136/bmjqs-2022-015471. Epub 2023 Feb 14.
Rawlings D, Tieman J, Miller-Lewis L. ‘I’m very interested in learning more’: What health care professionals in the Dying2Learn Massive Open Online Course think of the death doula role. Progress in Palliative Care. 2023 Nov 26. doi: 10.1080/09699260.2023.2281113
Mills J, Haberecht J. Expanding horizons of hospice and palliative care across the Asia-Pacific. Progress in Palliative Care. 2023 Nov 24. doi: 10.1080/09699260.2024.2286057.
Smith SE, Chowdhury MK, Doherty M, Morgan DD. Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review. Palliat Med. 2023 Apr;37(4):602-626. doi: 10.1177/02692163221136896. Epub 2022 Nov 25.
Damarell RA, Morgan DD, Tieman JJ, Senior T. Managing multimorbidity: a qualitative study of the Australian general practitioner experience. Fam Pract. 2023 Mar 28;40(2):360-368. doi: 10.1093/fampra/cmac096.
Walker R, Belperio I, Devery K, Morgan DD, Rawlings D, Raghavendra P. End-of-life care for adults with long-standing physical disability from the perspectives of bereaved family members: a qualitative exploratory study. Disability & Society. 2023 Nov 17. doi: 10.1080/09687599.2023.2279480.
Rawlings D, Van Dinther K, Miller-Lewis L, Tieman J, Swetenham K. Experiences of engaging a death doula: qualitative interviews with bereaved family members. Palliat Care Soc Pract. 2023 Nov 8;17:26323524231207112. doi: 10.1177/26323524231207112.
Parker D, Reymond L, Cooper K, Tieman J, Ivynian S. An evaluation of an online education programme to improve nurses' ability to support carers to use subcutaneous medicines. Int J Palliat Nurs. 2023 Nov 2;29(11):538-546. doi: 10.12968/ijpn.2023.29.11.538.
Phelan C, Hammond L, Thorpe C, Allcroft P, O'Loughlin M. A Novel Approach to Managing Thirst and Dry Mouth in Palliative Care: A Prospective Randomized Cross-Over Trial. J Pain Symptom Manage. 2023 Nov;66(5):587-594.e2. doi: 10.1016/j.jpainsymman.2023.08.005. Epub 2023 Aug 9.
Rawlings D, Damarell R, Tait P, Chakraborty A, Dalli A, Devery K, Tieman J. Emerging health and social policy considerations for safe and quality end-of-life care in Australia - the evidence, gaps and challenges. Aust Health Rev. 2023 Oct;47(5):586-588. doi: 10.1071/AH23166.
Wæhrens EE, Morgan DD, la Cour K, Lyons KD, Lozano ML, De Carlo MMP, Rezende G, Pilegaard MS. International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study. Palliat Med. 2023 Oct;37(9):1389-1401. doi: 10.1177/02692163231188155. Epub 2023 Aug 3.
Marston C, Morgan DD, Philip J, Agar MR. Experience and acceptability of a carer-focussed intervention in acute oncology settings: A qualitative study of people with advanced cancer and their carers. Aust Occup Ther J. 2023 Oct;70(5):570-580. doi: 10.1111/1440-1630.12887. Epub 2023 Jun 4.
Collier A, Chapman M. Matters of care and the good death - rhetoric or reality? Curr Opin Support Palliat Care. 2023 Sep 1;17(3):208-213. doi: 10.1097/SPC.0000000000000663. Epub 2023 Jul 4.
Brose JM, Willis E, Morgan DD. The intentional pursuit of everyday life while dying: A longitudinal qualitative study of working-aged adults living with advanced cancer. Palliat Med. 2023 Sep;37(8):1210-1221. doi: 10.1177/02692163231180911. Epub 2023 Jun 13.
Mills N, Chapman M, Sutherland I, Gillam L, Collins A. Parental perspectives on the clinician's approach to serious illness communication: A qualitative study. Palliat Support Care. 2023 Aug 1:1-6. doi: 10.1017/S1478951523001153. Epub ahead of print.
Tieman J, Morgan D, Jones K, Gordon S, Chakraborty A. Allied health professionals' contribution to care at end of life in aged care settings. Aust J Prim Health. 2023 Aug;29(4):341-348. doi: 10.1071/PY22178.
Dadich A, Hodgins M, Womsley K, Collier A. 'When a patient chooses to die at home, that's what they want… comfort, home': Brilliance in community-based palliative care nursing. Health Expect. 2023 Aug;26(4):1716-1725. doi: 10.1111/hex.13780. Epub 2023 Jun 9.
Tieman J, Hudson P, Thomas K, Saward D, Parker D. Who cares for the carers? carerhelp: development and evaluation of an online resource to support the wellbeing of those caring for family members at the end of their life. BMC Palliat Care. 2023 Jul 20;22(1):98. doi: 10.1186/s12904-023-01225-1.
Dadich A, Rodrigues J, De Bellis A, Hosie A, Symonds T, Prendergast J, Bevan A, Collier A. Patient safety for people experiencing advanced dementia in hospital: A video reflexive ethnography. Dementia (London). 2023 Jul;22(5):1057-1076. doi: 10.1177/14713012231168958. Epub 2023 Apr 9.
Hammond L, Chakraborty A, Thorpe C, O'Loughlin M, Allcroft P, Phelan C. Relieving Perception of Thirst and Xerostomia in Patients with Palliative and End-of-life Care Needs: A Rapid Review. J Pain Symptom Manage. 2023 Jul;66(1):e45-e68. doi: 10.1016/j.jpainsymman.2023.02.315. Epub 2023 Feb 23.
Rawlings D, Miller-Lewis L, Tieman J, Swetenham K. Death doula working practices and models of care: the views of death doula training organisations. BMC Palliat Care. 2023 Jun 23;22(1):78. doi: 10.1186/s12904-023-01200-w.
Collier A, Dadich A, Jeffs C, Noble A, Crawford GB. 'The palliative care ambulance': A qualitative study of patient and caregiver perspectives of an ambulance service. Palliat Med. 2023 Jun;37(6):875-883. doi: 10.1177/02692163231166760. Epub 2023 Apr 24.
Adams A, Miller-Lewis L, Tieman J. Learning Designers as Expert Evaluators of Usability: Understanding Their Potential Contribution to Improving the Universality of Interface Design for Health Resources. Int J Environ Res Public Health. 2023 Mar 5;20(5):4608. doi: 10.3390/ijerph20054608.
Rawlings D, Winsall M, Miller-Lewi L, & Tieman J. Natural Death Versus Known Date-Of-Death: A Qualitative Study of Views on Voluntary Assisted Dying in an Online Course About Death. Omega (Westport) 2023 Mar;86(4):1272-1290. doi: 10.1177/00302228211008771. Epub 2021 Apr 11.
Marston C, Morgan DD, Philip J, Agar M. Supporting Carers as Patients Move between Hospital and Home: A Systematic Review of Interventions to Support These Transitions in Care. J Palliat Med. 2023 Feb;26(2):270-298. doi: 10.1089/jpm.2022.0221. Epub 2022 Oct 13.
Belperio I, Devery K, Morgan DD, Rawlings D, Raghavendra P, Walker R. Health and disability care providers' experiences and perspectives on end-of-life care needs of individuals with long-standing physical disability: A qualitative interview study. Palliat Med. 2023 Jan;37(1):131-139. doi: 10.1177/02692163221128702. Epub 2022 Oct 20.
Devery K, Winsall M, Rawlings D. A qualitative study exploring challenges and solutions to negotiating goals of care at the end of life in hospital settings. Int J Qual Health Care. 2022 Nov 23;34(4):mzac089. doi:10.1093/intqhc/mzac089
Rawlings D, Miller-Lewis L, Tieman J, Swetenham K. An international survey of Death Doula training organizations: the views of those driving Death Doula training and role enactment. Palliat Care Soc Pract. 2022 Sep 12;16:26323524221123344. doi: 10.1177/26323524221123344.
van Gaans D, Erny-Albrecht K, Tieman J. Palliative Care Within the Primary Health Care Setting in Australia: A Scoping Review. Public Health Rev. 2022 Sep 6;43:1604856. doi: 10.3389/phrs.2022.1604856.
Devery K, Yin H, Rawlings K. End-of-Life Essentials education modules: a quality and safety initiative to improve health professionals end-of-life care knowledge, skills, attitude and confidence. BMJ Open Quality. 2022 Sep;11:e001925. doi: 10.1136/bmjoq-2022-001925
Boschen K, Phelan C, Lawn S. NDIS Participants with Psychosocial Disabilities and Life-Limiting Diagnoses: A Scoping Review. Int. J. Environ. Res. Public Health. 2022 Aug 16,19(16):10144. https://doi.org/10.3390/ijerph191610144.
Rowley G, Tieman J, Jones K. Steps towards equitable care: creating web pages to highlight diversity for Australia’s aged care and end of life care workforce. Aust J Prim Health. 2022 Aug;28(4):338-343. doi: 10.1071/PY21084.
Jessop S, Phelan C. Health-care workers' understanding of and barriers to palliative care services to Aboriginal children with cancer. J Paediatr Child Health. 2022 Aug;58(8):1390-1395. doi: 10.1111/jpc.16000. Epub 2022 Apr 30.
Pilegaard MS, la Cour K, Baldursdóttir F, Morgan D, Oestergaard LG, Brandt Å. Assistive devices among people living at home with advanced cancer: Use, non-use and who have unmet needs for assistive devices? Eur J Cancer Care (Engl). 2022 Jul;31(4):e13572. doi: 10.1111/ecc.13572. Epub 2022 Mar 14.
Javanparast S, Anaf J, Tieman J. Equity consideration in palliative care policies, programs, and evaluation: an analysis of selected federal and South Australian documents. BMC Palliat Care. 2022 Jun 16;21(1):109. doi: 10.1186/s12904-022-00997-2.
Marco DJ, Thomas K, Ivynian S, Wilding H, Parker D, Tieman J, Hudson P. Family carer needs in advanced disease: systematic review of reviews. BMJ Support Palliat Care. 2022 Jun;12(2):132-141. doi: 10.1136/bmjspcare-2021-003299. Epub 2022 Jan 7.
Morgan DD, Taylor RR, Ivy M, George S, Farrow C, Lee V. Contemporary occupational priorities at the end of life mapped against Model of Human Occupation constructs: A scoping review. Aust Occup Ther J. 2022 Jun;69(3):341-373. doi: 10.1111/1440-1630.12792. Epub 2022 Feb 23.
Morgan DD, Willis E, Sweet K, Roe P, Rabaçal J, Currow DC. The Complexities of Prescribing Assistive Equipment at the End of Life-Patient and Caregivers' Perspectives. Healthcare (Basel). 2022 May 29;10(6):1005.
Kochovska S, Currow D, Chang S, Johnson M, Ferreira D, Morgan D, Olsson M, Ekström M. Persisting breathlessness and activities reduced or ceased: a population study in older men. BMJ Open Respir Res. 2022 May;9(1):e001168. doi: 10.1136/bmjresp-2021-001168.
Devery K, Winsall M, Rawlings D. Teams and continuity of end-of-life care in hospitals: managing differences of opinion. BMJ Open Qual. 2022 Apr;11(2):e001724. doi: 10.1136/bmjoq-2021-001724.
Nagarajan SV, Lewis V, Halcomb E, Rhee J, Morton RL, Mitchell GK, Tieman J, Phillips JL, Detering K, Gavin J, Clayton JM. Barriers and facilitators to nurse-led advance care planning and palliative care practice change in primary healthcare: a qualitative study. Aust J Prim Health. 2022 Apr;28(2):151-157. doi: 10.1071/PY21081.
Vilapakkam Nagarajan S, Lewis V, Halcomb EJ, Rhee J, Tieman J, Clayton JM. Australian general practice experiences of implementing a structured approach to initiating advance care planning and palliative care: a qualitative study. BMJ Open. 2022 Mar 28;12(3):e057184. doi: 10.1136/bmjopen-2021-057184.
Clark J, Chang S, Kinchin I, Ferreira D, Kochovska S, Morgan D, Poulos LM, Johnson MJ, Ekström M, Currow DC. Lower workforce participation is associated with more severe persisting breathlessness. BMC Pulm Med. 2022 Mar 18;22(1):93. doi: 10.1186/s12890-022-01861-y.
Cheyne S, Lindley RI, Smallwood N, Tendal B, Chapman M, Fraile Navarro D, Good PD, Jenkin P, McDonald S, Morgan D, Murano M, Millard T, Naganathan V, Srikanth V, Tuffin P, Vogel J, White H, Chakraborty SP, Whiting E, William L, Yates PM, Callary M, Elliott J, Agar MR; National COVID-19 Clinical Evidence Taskforce. Care of older people and people requiring palliative care with COVID-19: guidance from the Australian National COVID-19 Clinical Evidence Taskforce. Med J Aust. 2022 Mar 7;216(4):203-208. doi: 10.5694/mja2.51353. Epub 2021 Dec 5.
Rawlings D, Miller-Lewis L, Tieman J. ‘It’s like a wedding planner’: Dying2Learn Massive Open Online Course participants views of the Death Doula role. Progress in Palliative Care. 2022 Jan 20;30(5):281-287. DOI: 10.1080/09699260.2021.2021371
Rawlings D, Winsall M, Yin H, Devery K. What is a compassionate response in the emergency department? Learner evaluation of an End-of-Life Essentials online education module. Emerg Med Australas. 2021 Dec;33(6):983-991. doi: 10.1111/1742-6723.13776. Epub 2021 May 5.
Barnes-Harris M, Allingham S, Morgan D, Ferreira D, Johnson MJ, Eagar K, Currow D. Comparing functional decline and distress from symptoms in people with thoracic life-limiting illnesses: Lung cancers and non-malignant end-stage respiratory diseases. Thorax 2021 Oct;76(10):989-995. doi: 10.1136/thoraxjnl-2020-216039. Epub 2021 Feb 16.
Mills J, Fox J, Damarell R, Tieman J, Yates P. Palliative care providers' use of digital health and perspectives on technological innovation: a national study. BMC Palliat Care. 2021 Aug 7;20(1):124. doi: 10.1186/s12904-021-00822-2.
Dolgoy N, Driga A, Brose JM. The Essential Role of Occupational Therapy to Address Functional Needs of Individuals Living with Advanced Chronic Cancers. Semin Oncol Nurs. 2021 Aug;37(4):151172. doi: 10.1016/j.soncn.2021.151172. Epub 2021 Jul 16.
Morgan DD, Marston C, Barnard E, Farrow C. Conserving dignity and facilitating adaptation to dependency with intimate hygiene for people with advanced disease: A qualitative study. Palliat Med. 2021 Jul;35(7):1366-1377. doi: 10.1177/02692163211017388. Epub 2021 May 28.
Tieman J, Lewis V. Benefits of Structured Engagement with Target Audiences of a Health Website: Study Design for a Multi-Case Study. Healthcare (Basel). 2021 May 18;9(5):600. doi: 10.3390/healthcare9050600.
Rawlings D, Davies G, Tieman J. Compassionate communities - What does this mean for roles such as a death doula in end-of-life care? Public Health. 2021 May;194:167-169. doi: 10.1016/j.puhe.2021.02.038. Epub 2021 May 1.
Tait P, Chakraborty A, Jones K, Tieman J. What Is the Community Pharmacists' Role in Supporting Older Australians with Palliative Care Needs? Healthcare (Basel). 2021 Apr 21;9(5):489. doi: 10.3390/healthcare9050489.
Morgan DD, Litster C, Winsall M, Devery K, Rawlings D. "It's given me confidence": a pragmatic qualitative evaluation exploring the perceived benefits of online end-of-life education on clinical care. BMC Palliat Care. 2021 Apr 13;20(1):57. doi: 10.1186/s12904-021-00753-y.
Koczwara B, Meng R, Miller MD, Clark RA, Kaambwa B, Marin T, Damarell RA, Roder DM. Late mortality in people with cancer: a population-based Australian study. Med J Aust 2021 Apr;214(7):318-323. doi: 10.5694/mja2.50879. Epub 2020 Dec 9.
Keenan AJ, Tsourtos G, Tieman J. The Value of Applying Ethical Principles in Telehealth Practices: Systematic Review. J Med Internet Res. 2021 Mar 30;23(3):e25698. doi: 10.2196/25698.
Rawlings D, Litster C, Miller-Lewis L, Tieman J, Swetenham K. End-of-life doulas: A qualitative analysis of interviews with Australian and International death doulas on their role. Health Soc Care Community. 2021 Mar;29(2):574-587. doi: 10.1111/hsc.13120. Epub 2020 Aug 3.
Kochovska S, Agar MR, Phillips JL, Tieman J, Sheehan C, Clark K, Currow DC. Applying evidence-based symptomatic treatments from other clinical disciplines to palliative care. Palliat Med. 2021 Mar;35(3):458-460. doi: 10.1177/0269216321996984. Epub 2021 Feb 27.
Philip J, Collins A, Phillips J, Luckett T, Morgan DD, Lobb EA, DiGiacomo M, Kochovska S, Brown L, Currow DC. The Development of the Australian National Palliative Care Clinical Studies Collaborative "Integrating Qualitative Research into Clinical Trials Framework". J Palliat Med. 2021 Mar;24(3):331-337. doi: 10.1089/jpm.2020.0480. Epub 2020 Oct 20.
Miller-Lewis LR, Lewis TW, Tieman J, Rawlings D, Parker D, Sanderson CR. Words describing feelings about death: A comparison of sentiment for self and others and changes over time. PLoS One. 2021 Jan 6;16(1):e0242848. doi: 10.1371/journal.pone.0242848.
Damarell RA, Morgan DD, Tieman JJ, Healey DF. Multimorbidity through the lens of life-limiting illness: how helpful are Australian clinical practice guidelines to its management in primary care? Aust J Prim Health. 2021 Jan;27:122-129. doi: 10.1071/PY20164.
Vandersman P, Perimal-Lewis L, Tieman J. Is There an App for That? A Scoping Review of Apps for Care Workers in the Aged Care Sector. In Maeder AJ, Higa C, van den Berg MEL, Gough C, editors, Telehealth Innovations in Remote Healthcare Services Delivery - Global Telehealth 2020: Global Telehealth 2020. Amsterdam: IOS Press. 2021. p. 124-134. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI210035
Taylor A, Tieman J, Maeder A. Digital Innovations for Aged Care: Impacts in the COVID-19 Pandemic. In Merolli M, Bain C, Schaper LK, editors, Healthier Lives, Digitally Enabled - Selected Papers from the Digital Health Institute Summit 2020: Selected Papers from the Digital Health Institute Summit 2020 . Vol. 276. IOS Press. 2021. p. 51-57. (Studies in Health Technology and Informatics). doi: 10.3233/SHTI210010.
Damarell RA, Morgan DD, Tieman JJ, Healey D. Bolstering General Practitioner Palliative Care: A Critical Review of Support Provided by Australian Guidelines for Life-Limiting Chronic Conditions. Healthcare (Basel). 2020 Dec 11;8(4):553. doi: 10.3390/healthcare8040553.
Hunt J, Brown L, Fazekas B, Doogue M, Rowett D, Luckett T, Morgan D, Reed-Cox K, Sheehan C, Tuffin P, Currow DC. Evaluation of the IMPACCT Rapid Program: A Cross-Sectional Survey of International Site Investigators. J Palliat Med. 2020 Oct;23(10):1292-1293. doi: 10.1089/jpm.2020.0239.
Morgan DD, Brown A, Cerdor PA, Currow DC. Does Resource Utilization Group-Activities of Daily Living Help Us Better Interpret Australian Karnofsky-Modified Performance Scale? J Palliat Med. 2020 Sep;23(9):1153-1154. doi: 10.1089/jpm.2020.0163.
Tait P, Sheehy K, Sindhusake D, Muscillo N. Factors affecting access to subcutaneous medicines for people dying in the community. Progress in Palliative Care. 2020 Sep 2;28(5):326-333. doi:10.1080/09699260.2020.1746033.
Rawlings D, Winsall M, Yin H, Devery K, Morgan DD. Evaluation of an End-of-Life Essentials Online Education Module on Chronic Complex Illness End-of-Life Care. Healthcare (Basel). 2020 Aug 25;8(3):297. doi: 10.3390/healthcare8030297.
Kochovska S, Chang S, Morgan DD, Ferreira D, Sidhu M, Saleh Moussa R, Johnson MJ, Ekström M, Currow DC. Activities Forgone because of Chronic Breathlessness: A Cross-Sectional Population Prevalence Study. Palliat Med Rep. 2020 Aug 18;1(1):166-170. doi: 10.1089/pmr.2020.0083.
Rawlings D, Yin H, Devery K, Morgan D, Tieman J. End-of-Life Care in Acute Hospitals: Practice Change Reported by Health Professionals Following Online Education. Healthcare (Basel). 2020 Aug 6;8(3):254. doi: 10.3390/healthcare8030254.
Tait P, Cuthbertson E, Currow DC. What Are the Factors Identifying Caregivers Who Need Help in Managing Medications for Palliative Care Patients at Home? A Population Survey. J Palliat Med. 2020 Aug;23(8):1084-1089. doi: 10.1089/jpm.2019.0573. Epub 2020 Mar 10.
Damarell RA, Morgan DD, Tieman JJ. General practitioner strategies for managing patients with multimorbidity: a systematic review and thematic synthesis of qualitative research. BMC Fam Pract. 2020 Jul 1;21(1):131. doi: 10.1186/s12875-020-01197-8.
Oh C, Miller-Lewis L, Tieman J. Participation in an Online Course about Death and Dying: Exploring Enrolment Motivations and Learning Goals of Health Care Workers. Education Sciences. 2020 Apr 16; 10(4):112. https://doi.org/10.3390/educsci10040112.
Damarell RA, Lewis S, Trenerry C, Tieman JJ. Integrated Care Search: development and validation of a PubMed search filter for retrieving the integrated care research evidence. BMC Med Res Methodol. 2020 Jan 21;20(1):12. doi: 10.1186/s12874-020-0901-y.
To THM, Currow DC, Swetenham K, Morgan DD, Tieman J. How Can Activity Monitors Be Used in Palliative Care Patients? J Palliat Med. 2019 Jul;22(7):830-832. doi: 10.1089/jpm.2018.0414. Epub 2019 Mar 19.
Tait P, Gravier S, Erny-Albrecht K, Tieman J. Symptom Management in the Terminal Phase: Turning Challenges into Opportunities. Australasian Journal on Ageing. 2019 May;38(S1):61-62. P58. doi: 10.1111/ajag.12661
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