Institutes & Centres
“The biggest problem when you have a child with an eating disorder is this: every tactic you have ever used in parenting is useless. "Worse than that: it’s wrong,” writes journalist and author Caitlin Moran in a moving account of her daughter’s eating disorder.
It is an expression of desperation that Professor Tracey Wade understands only too well.
She has worked as a clinician in the area of eating disorders for 30 years and knows they become a family rather than an individual problem.
“We're interested in trying to get people to seek help as early as possible for an eating disorder,” Professor Wade says. “And that includes families as well as those people with an eating disorder.”
Eating disorders mainly emerge in early adolescence – although not only then – and are often dismissed at first as “a phase”. The usual trajectory is an insidious beginning, with wanting to eat a bit less, then to lose a bit of weight, then to become a vegan, then not to eat with the family. “By that time, it’s really starting to ring alarm bells,” says Professor Wade.
While intervention can seem difficult, it is essential to confront the problem early.
“Particularly when your teenage child says they want to lose weight, I think you need to really work that through with them. Do they need to lose weight? How much weight? Can we agree on a limit? So, it's actually being monitored.
But a common pattern for people with eating disorders means that once a weight goal is reached, they still don't feel that good about themselves, so they think I'll just lose a bit more weight. A vicious cycle that continues ad infinitum, even when they're at 39 kilos.”
The “crucible” for the development of most eating disorders, Professor Wade says, is at that early adolescence to mid-adolescence point, “especially if they’re in a peer group that's particularly critical of appearance and they’re being bullied or teased about appearance”.
“We also know there are character traits that predispose people, like perfectionism and high levels of anxiety. So when we talk about an eating disorder, we think that it is seen as solution to a problem – often a sense of low self-esteem and feeling a bit out of control.
“And so the focus on the weight, the number on the scales becomes very beguiling because that can be the answer to your problem.”
As to the causes, perhaps surprisingly, there is a genetic contribution to eating disorders of about 50%, only slightly lower than for schizophrenia or bipolar affective disorder.
“It's certainly higher than most people think,” says Professor Wade. “There is a bit of stigma around eating disorders, thinking that it's self-imposed or just silly girls wanting to be thin.”
But there is nothing trivial about eating disorders, which are one of the highest mortality psychiatric disorders.
Professor Wade has worked closely with Flinders colleague, epigeneticist Associate Professor Sarah Cohen-Woods. “With Sarah, we want to look more closely at specific environments, particularly protective environments, so that we can protect people by decreasing the chances that genes will express themselves as an eating disorder. We know that peer teasing about appearance is an important trigger of genetic susceptibility.”
Most people automatically think of eating disorders as an adolescent girls’ problem, and it is true they are at high risk, particularly in the two windows of entering adolescence and then entering adulthood.
“About 20% of young women in their twenties have disordered eating and are preoccupied with their weight and shape, either bingeing or purging or have low weight.”
But men are not immune.
“At any time, we would probably only have one or two men coming through our clinic but they really seem to have a worse course of the illness if they get anorexia nervosa as a teenager. They’re usually highly obsessive and perfectionistic and often end up in hospital and have a longer course of the illness.”
Professor Tracey Wade
Older women in their forties and fifties are another group vulnerable to disordered eating, with about 15% struggling with that at any one time.
But effective treatment remains elusive.
“Interventions are very hard because of an ambivalence to the condition. They might not like bits of the disordered eating such as the binge-eating and the vomiting, but they don't want to gain weight or they want to continue losing weight,” Professor Wade says.
“Our treatments help between 30 to 50% of people recover. So that’s a start, but obviously it’s not good enough. But I don't know that we're going to come up with radically new psychotherapies.
“We know that cognitive behaviour therapy for bulimia nervosa is good, but again it only helps 50% of people recover."
Professor Wade does not expect any magic bullets anytime soon.
“I think we're looking at really hard and methodical work of using individual profiles to find a good-enough treatment, but then to ask what we need in addition to that. What's the genetic profile? What's the personality profile? What are the particular risk factors? What would make sense to add to the good-enough treatment so it's actually very effective for the individual?”
It’s these challenges that present the next research frontier for Professor Wade and her colleagues as they comb through clinical, chemical, and environmental factors in their quest to bring order to the much maligned, life threatening chaos of disordered eating.
Article published on 13 November 2020
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